Just wanted to let you all know that Dina is still feeling fabulous and looking just as great! Short hair is very appealing to her...I MUST get a picture of my two girls together with me...I think it might be the last and only time they will both have short hair...the caption might read something like: 'Can you tell which is the mother and which is the daughter?' Ha Ha...only the "color " of hair can tell for sure!!!
As you all know, I have been dealing with a UTI since the lung surgery (last November 25). It actually showed its ugly head mid December. So I have been treating it since that time and while I did get some relief while on the various antibiotics, it was always back as soon as I finished. After the last round, and I had just started up again, I could tell things were not good. So I went in for more testing. The doctor seemed to think that perhaps the five kidney stones that we knew were in my left kidney (from all the scans I had prior to the lung surgery) was harboring the bacteria making it difficult if not IMPOSSIBLE to get rid of it. Last Thursday I was in day surgery for a laser lithotripsy. I went in at 9:30 am, had the surgery about 10:45, was scheduled to leave at 2:30 pm, actually left at 7 PM! Hmmm...I don't do so well with pain pills and anesthetic it seems. I was quite nauseous in the recovery room and stayed an hour and a half longer than planned. And I had some vomiting issues in both recovery and in my room. Okay...I was finally able to go home and went right to bed and pretty much slept away the first two days at home. The surgery was a little more invasive and intensive than originally planned. The largest of the little stones back in the fall was measured at 5 mm....what the doctor faced was a boulder about 2.5 CM! (That is about an inch!) He was absolutely correct in assuming the bacteria latched onto the stones... and it grew and grew...very rapidly! the surgery itself took longer, he had a lot to blast away, he tried getting in there and pulling it out, but was unable to do so. I have a stent which will come out next Monday and I shudder to think what will come out with it and afterwards. This type of bacteria which I am growing is almost impossible to get rid of once it gets into the kidney...much easier in the bladder. Scott and I have been doing some reading and we have lots of questions to ask the doctor when we see him on Monday. It seems I may always have this and since I seem to make stones, I may have this procedure done many more times in my lifetime and will need to be on a low dosage of antibiotics for the rest of my life...well, let's not get ahead of ourselves, those are just possibilities...there could always be a miracle!
So how am I feeling? Really not so great. I stopped the pain pills and only taking ibuprofen and that seems to be working for me. I have a lot of burning, and cramping and back aches, and generally just feeling very yucky. I am hoping once the stent comes out, some of those symptoms will disappear. I am continuing with the low dosage of antibiotic, plus a hormonal drug, plus the cranberry capsules, and the 1000 mg of vitamin C.
Oh...and I am not bothered one bit by this rain...if I have to feel crummy, why not have the weather be just as bad!
Now for some good news. Bill Foelker's house sold before we even put it on the market! Someone stopped by while the inside was being painted and left a card. Scott called and he has given us earnest money!! Yeah! That was easy! Then, we started looking at houses with Lacey hoping she could find something and move into a house a little bit bigger for her family. She found one in Hebb Park and made an offer and it was accepted. That put her and Aaron on Fast Track to get their own home cleaned up, fixed up, repaired, painted and everything else that two dogs and three wild kids can do to a house. In very short time, they managed all of that and the day we left for Disneyland, May 16, her house went on the market and the next day someone offered full price for it! Yahoo!! It looks like this summer will be a big move for Lacey...a five bedroom and bathroom home, TV rooms, bedroom for each of the kiddos and their house guest, Aaron's step sister. I will post some pictures soon...!!
That's it friends! I will let you know what the doctor says on Monday!!
Showing posts with label me. Show all posts
Showing posts with label me. Show all posts
Wednesday, May 29, 2013
Tuesday, January 29, 2013
Dina ~ Post 6th Chemo
It has not been good friends...Dina in bed all weekend, just not feeling good. And then to top it off, our littlest buddy gets sick...coughing coughing coughing...constantly! (kind of like me, very annoying...although, now that I type this, I am NOT coughing very much this morning at all!!). Jamie was being a GREAT daddy and doing his best to keep Jalen out of Dina's room...and you know he is a Mommy's boy and loves to snuggle and give hugs and a million kisses...so this is hard on him, but he actually understands the importance of why he can't be near her when he is sick.
Friday morning when Dina left for her chemo, Scott headed over to stay with Jalen (I was still in bed!) When I went over there at 10 am, Jalen was coughing and it did not sound good. I knew that we could NOT send him to school. Nana was coming to the house to do her weekly cleaning, washing, etc of Dina's house, so he stayed with Nana (after they went out and bought 25 balloons to celebrate the end of this round of chemo) When Jamie came home about 3, he immediately took Jalen up to the theater room and stayed up there all night, even convinced Jalen that a "camp-out" would be fun up there! But then after a bit, Jamie could NOT stay on the hard floor any longer, so he tried to sneak away. It didn't take long for Jalen to realize his daddy was gone, so he gets up and goes to their bedroom...hacking and coughing...so Jamie gets up and takes him into Ellie's bed (who is NOT home, she was having a sleepover with a friend) and Jamie and Jalen sleep (or NOT) in the double bed...Dina could hear Jalen coughing all night long...no sleep for anyone!
Saturday, Jamie and Ellie had a couple of basketball games scheduled and Dina was still in bed not feeling well, so we thought we would take Jalen to lunch and go see Ellie's game. Well, that little guy was coughing so much we decided it would not be a good idea to go to the game, but we did take him to his favorite place to eat: Panda Express!! He gets orange chicken and rice! As he was eating I asked him what he would like to do after lunch (knowing we needed to keep him out of the house so Dina could rest and also so that I would NOT have to spend hours playing Xbox or Wii with him!! ha ha!) and you will not believe his answer! He said, "Maybe go to a store and look at clothes!" OMG, He is is Father's son!!! Yes, we took him to "Dick's Sporting Goods" because he informed us that he had to give Tristan his very favorite basketball shorts, so Papa thought maybe we could find a new favorite short at that store! And guess what? We did!!
After 2 1/2 hours we brought him home and when we walked into Mommy's bed room, guess what we saw?
Mommy and Lacey hanging out together in the bed...they were watching a movie and looking for new hats on the Ipad...the Snooks are planning a trip to Arizona...Dina is thinking maybe knit hats will be a bit too hot for the Arizona sun!!
Even not feeling well, white as a ghost, our Dina still puts on a smiley face for us! She is so strong and amazing, I am really proud of her. I know that Friday was an emotional day for her...she made it to the last chemo....is it the last? She is afraid, but as we talked she told me from the very beginning she was trusting, but it is the waiting that is the hardest and gives her too much time to think and worry...did it work? what comes next?
Well, Monday came and she called the doctor's office early, they rescheduled her velcade infusion so she went in earlier than normal...she had the velcade and the blood draw and again her red count was very low, so they sent her to the outpatient in the hospital and she had a blood transfusion. She was gone 6 hours! She has been worried about the blood transfusion and not wanting to do it, but this is important. She still felt yucky in the evening, but was hopeful that Tuesday will bring a better day! We are hoping that it is a turning point for her also...but I think she is scheduled for a white cell booster shot and sometimes with the combination of white and red cell shots her bones ache and throb! Maybe with the transfusion, it will be minimized!
We really want her to be well for Sunday as our church has been selling Team Dina gear at all the Masses for the last three weeks...I think they have sold A LOT! And everyone is going to wear their Team Dina gear (or any purple clothing) to the 11 am Mass on this Sunday, Feb 3 to show support for Dina...it is just amazing how many people are embracing her and sending up prayers for healing. She is truly blessed and we are blessed to be living in such a loving and giving community. Father Bill is going to do a special blessing of the sick...for everyone and anyone! All are welcome! If you can join us, please do so...it is Resurrection Catholic Church on the corner of Ek and Stafford Rd. Mass starts at 11 am!
Thank you so much for your continued prayers and love that you are showing the family!
Lacey update: doing good...just a few twinges of pain periodically, but she says she is back to normal...no more pain pills and she will have the stent removed on Wednesday!
Me: the UTI is back!!! I finished my antibiotics on Friday...had a good weekend, feeling like I beat this thing finally (only lasted 6 weeks!), but woke up Monday morning and knew immediately it was back with a vengeance! The plan now is to see my urologist!
Psalm 29:11 The Lord gives His people strength, the Lord blesses them with peace.
We are in good hands!!
Friday morning when Dina left for her chemo, Scott headed over to stay with Jalen (I was still in bed!) When I went over there at 10 am, Jalen was coughing and it did not sound good. I knew that we could NOT send him to school. Nana was coming to the house to do her weekly cleaning, washing, etc of Dina's house, so he stayed with Nana (after they went out and bought 25 balloons to celebrate the end of this round of chemo) When Jamie came home about 3, he immediately took Jalen up to the theater room and stayed up there all night, even convinced Jalen that a "camp-out" would be fun up there! But then after a bit, Jamie could NOT stay on the hard floor any longer, so he tried to sneak away. It didn't take long for Jalen to realize his daddy was gone, so he gets up and goes to their bedroom...hacking and coughing...so Jamie gets up and takes him into Ellie's bed (who is NOT home, she was having a sleepover with a friend) and Jamie and Jalen sleep (or NOT) in the double bed...Dina could hear Jalen coughing all night long...no sleep for anyone!
Saturday, Jamie and Ellie had a couple of basketball games scheduled and Dina was still in bed not feeling well, so we thought we would take Jalen to lunch and go see Ellie's game. Well, that little guy was coughing so much we decided it would not be a good idea to go to the game, but we did take him to his favorite place to eat: Panda Express!! He gets orange chicken and rice! As he was eating I asked him what he would like to do after lunch (knowing we needed to keep him out of the house so Dina could rest and also so that I would NOT have to spend hours playing Xbox or Wii with him!! ha ha!) and you will not believe his answer! He said, "Maybe go to a store and look at clothes!" OMG, He is is Father's son!!! Yes, we took him to "Dick's Sporting Goods" because he informed us that he had to give Tristan his very favorite basketball shorts, so Papa thought maybe we could find a new favorite short at that store! And guess what? We did!!
After 2 1/2 hours we brought him home and when we walked into Mommy's bed room, guess what we saw?
Even not feeling well, white as a ghost, our Dina still puts on a smiley face for us! She is so strong and amazing, I am really proud of her. I know that Friday was an emotional day for her...she made it to the last chemo....is it the last? She is afraid, but as we talked she told me from the very beginning she was trusting, but it is the waiting that is the hardest and gives her too much time to think and worry...did it work? what comes next?
Well, Monday came and she called the doctor's office early, they rescheduled her velcade infusion so she went in earlier than normal...she had the velcade and the blood draw and again her red count was very low, so they sent her to the outpatient in the hospital and she had a blood transfusion. She was gone 6 hours! She has been worried about the blood transfusion and not wanting to do it, but this is important. She still felt yucky in the evening, but was hopeful that Tuesday will bring a better day! We are hoping that it is a turning point for her also...but I think she is scheduled for a white cell booster shot and sometimes with the combination of white and red cell shots her bones ache and throb! Maybe with the transfusion, it will be minimized!
We really want her to be well for Sunday as our church has been selling Team Dina gear at all the Masses for the last three weeks...I think they have sold A LOT! And everyone is going to wear their Team Dina gear (or any purple clothing) to the 11 am Mass on this Sunday, Feb 3 to show support for Dina...it is just amazing how many people are embracing her and sending up prayers for healing. She is truly blessed and we are blessed to be living in such a loving and giving community. Father Bill is going to do a special blessing of the sick...for everyone and anyone! All are welcome! If you can join us, please do so...it is Resurrection Catholic Church on the corner of Ek and Stafford Rd. Mass starts at 11 am!
Thank you so much for your continued prayers and love that you are showing the family!
Lacey update: doing good...just a few twinges of pain periodically, but she says she is back to normal...no more pain pills and she will have the stent removed on Wednesday!
Me: the UTI is back!!! I finished my antibiotics on Friday...had a good weekend, feeling like I beat this thing finally (only lasted 6 weeks!), but woke up Monday morning and knew immediately it was back with a vengeance! The plan now is to see my urologist!
Psalm 29:11 The Lord gives His people strength, the Lord blesses them with peace.
We are in good hands!!
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